Sunday, October 28, 2012

free-falling, mouth open

I did not want to be that person who thinks that getting cancer made colors seem brighter, that life is now more precious and fleeting and all that. I dunno; I guess I like to think that colors have always seemed pretty bright to me. I feel like I've done a durn good job of savoring life, feeling grateful, crying and laughing easily and genuinely at hellos, goodbyes, and here-we-are-all-together moments. I've been really, really good at that, so much more often than not, and I want to give my earlier self props for being so good and grateful. I secretly would like an existential badge, if they give those out.

I especially don't want to give "cancer" credit for making me enjoy life more. I feel stubborn about that. It's like when you lose a great tree from a tremendous windstorm that tears through your yard, and then afterwards you hate to admit that the extra light on the garden is kind of nice. You want to be upset about the tree.

No, that's not quite right.

It's more like getting cancer peels off a layer of something -- maybe it metaphorically takes your clothes off. I think that's it. So hot feels hotter (think metal bench in August) and cold feels colder, and everything is more pointedly itself. Maybe this is what people at nudist colonies are after -- that sense of "I'm awake now!" you must get when you walk naked into a room full of people.

Whatever it is like, I have ended up acutely, intensely, naked-on-a-hot-bench aware of the passing of time. Time seems absurdly fast and life almost comically short. I feel like that guy at the end of 2001: A Space Odyssey, where he is just getting more and more wide-eyed as he careens through space and time, wrinkling before our eyes. Whether I die at 60 or at 90, I cannot imagine thinking this was any other than a ridiculously fast free-fall -- like that other guy, the one who stepped away from his balloon, 24 miles up, and fell toward Earth at 800 miles an hour. Except in emotional time you don't have a spacesuit, and your cheeks are flapping against the air and you are leaving a trail of saliva as you fall.

Which actually happened to me once on the Hellevator ride at Six Flags, where they lift you straight up and then drop you down suddenly. I came off that thing with a line of saliva UP the entire length of my face, and all I had done was open my mouth as we dropped three stories.

Anyway. I am having more free fall, saliva-up-the-face moments as time goes by. It's good and it's hot and it's sometimes freezing cold. It's all over the place, like this post. I am not complaining; just trying to report out.

An example of this merging of the sublime and the ridiculous I am experiencing: Laura bought me a new pair of knee socks when she was out the other day. I hadn't known I'd needed knee socks, but it turns out they were JUST the thing.

Note that I still can't resist the temptation to pick up a little piece of schmootz on the floor in the midst of dancing. Dang! I am so far from enlightenment, and there is so little time.

Thursday, October 18, 2012

might as well let it all hang out

In a few weeks, I'll be "3 years out" from my diagnosis. I guess that's good. People seem to think it's good.

It doesn't feel like I've gotten nearly far enough. It's like you're on a swampy hike you didn't want to go on, didn't pack right for, and are kind of tired and want to go home from. Supposedly, five years beyond your diagnosis, you make your way out of the swamp, you're in the clear, and there is a....here I must pause. Most people might be able to end that sentence with "there is a big party awaiting you" or "they give you a nice, cold beer." Neither of those sounds like my style of celebrating, but it kind of deflates the sentence to say "you make your way out of the swamp and...you have a nice supper with your family."

In one way or another, the possibility of my cancer recurring is on my mind just about all the time. It's like it's tucked in one of those ridiculously shallow pockets they put on women's pants, and it falls out when I'm just walking around. I bend over -- over and over again -- to pick it back up.

It pains me that this is true, and it makes me wince to admit it here. But if I'm in the business of telling my truth, which would seem key to the promise-to-self in "writing therapy," I feel like I should come clean about the impact cancer has had on me.

It is for me what we call in the therapy biz a "narcissistic wound" to have been so changed by cancer (a narcissistic wound means "a blow to my ego," but the clinical term somehow sounds both more self-deprecating and self-inflating at the same time, which is a neat trick -- rarely, I will note, used by therapists when speaking of themselves). I didn't want to be one of those people who thought about their cancer so much. I guess there must be a part of me that thinks it is...narcissistic to do so. Gee, I'm practically talking myself into getting some therapy.

I was "compartmentalizing" (it's just going to be one of those posts, it seems) pretty well until the BRCA2 gene showed up this spring. I was going along assuming that I had had double my statistical share of lightning strikes to the noggin: the cancer in the first place, and then the more unusual, more aggressive "triple negative" nature of my tumor. My karmic dues were kind of paid up, is what I was thinking.

But then in March, when genetic testing showed a little broken bit, a tiny flaw in my otherwise pretty well-woven genetic vest, things changed. You wear clothes, right? All it takes is one broken thread and you've got a problem. Somewhere along the line, genetic stitch number 6141 hit a snag, "resulting in premature truncation of the BRCA2 protein at amino acid position 2003." About 5% of breast cancer patients have this broken thread in their genetic fabric. 


So I've become a little spooked; like that guy in South Carolina who's been hit by lightning a few times. You start to wonder if Zeus is taking aim at you with a thunderbolt when you're out and about in the weather of life. Maybe that's narcissistic, too, but there it is. Clearly I've got too much stuff in that damned pocket.

I'm okay. I'm changed. I just fell into a ditch on the hike, type of thing. Remember the hike? When I crawled out of the ditch, something about my path had been altered.

I have too much to say about all of this to cram it into one post. But I might as well tell you where I'm really at, since the funky gene means I'm on this hike for good.






Friday, October 12, 2012

pep rallies and other signs of fall


Back in the day, you could tell that autumn had arrived for real when the canada geese flew due south  in a honking V formation. They're all discombobulated now, of course. Though there are some traditionalist geese who still buy into the migration, a lot of them insist that the ritual is negotiable. It seems to take them a long time to get their goose act together. You can see raggedy formations flying in wide circles, landing often to check their glitchy GPS, or looping back because someone thinks they might have left the teakettle on. You can hear the traditionalist geese arguing with the golfcourse-potato geese -- who just don't wanna. I feel bad for the whole disoriented canada geese family, but you just can't count on them anymore to tell you when it's fall, and that's the bottom line.

Instead I focus on more reliable signs of fall: apples, pears, maple leaves in the cat food. There's a gradual shift toward stocking up on food in general when fall arrives in earnest -- some mammalian instinct that leads me to make large batches of applesauce, pesto, granola.

And there's butternut squash in the fall, of course. Here's today's pick of our massive butternut squash litter. I have half a mind to give this one a name, like I did for Sam the Carrot, a gigantic garden carrot I carried to school for a couple of weeks in second grade, until mom sat me down and told me it was time to add Sam -- by then all floppy and aggrieved looking -- to some soup.

(You see the problems that can arise when I get attached. I wish I could say I've worked all that through. I mean, I'm over Sam. But I can get mightily attached to things that are crazy evidence of the crazy beauty of this crazy life.)

If you've ever worked in a school, you know that Reunion or Homecoming is a sign of fall, too. The rituals around Homecoming are at least as reliable, and a heck of a lot louder and honking as the geese. It's happening at Porter's this weekend, just down the street from me, and it's happening at Fieldston, Laura's school in the Big City.
This morning she sent me a video clip of her fall ritual, and I sent her a clip of mine. We are having different kinds of pep rallies, as you can see, but we're both enjoying the crazy beauty of this crazy life.



Friday, October 5, 2012

exactly what I need

This is exactly what I need to have happen right now. That's what this psychologist tells himself when something in his life goes awry. In his own example, it was the waiting room toilet overflowing with bad stuff, seeping beyond the tiny bathroom into where a family was waiting for their therapy session.

Okay, it was only an individual therapy session. I added the family bit. Because that's an even more interesting picture, isn't it? What a mess that would be, with the whole, already kind of stressed out family not sure what to do, while the therapist tries to maintain unconditional positive regard for everyone, including the schmuck that clogged his toilet. I wonder which families "make progress" after that adventure, and which families are moved that much closer to throwing in the towel. It'd be a good sign, wouldn't it? To be in a family that drove home kind of happy about being grossed out together.

Anyway: "This is exactly what I need to have happen right now." Telling yourself that shifts the mind from resistant mode into accepting mode, is the idea.

I've tried it several times, and it actually has helped a bit, especially for things like butternut squash soup spilling in the fridge. With larger things -- like feeling at sea in my life, which I sort of have for the past few weeks -- it's a little trickier. The very nature of feeling "at sea" involves forgetting big truths like you are always exactly where you are in order to learn exactly what you are supposed to learn.

This sea's waters are not rough or threatening. Hardly. I'm just bobbing along thinking a paddle would be really, really handy. But even if I had a paddle, I'm not quite sure which way to shore, it's so foggy.

There are long moments when I can hang onto the idea that bobbing along in the fog is exactly what I need to do right now. This bobbing is precisely what I need to help me tune in to my heart, my intuition, my...truth.

And then there are much longer moments when I have just been feeling fogged in. I'm not sure where I want to move in my work, in my writing, in my use of this evaporative thing called time.

My questions are gigantic, and they're magnified by the fog.

What am I meant to want, and what do I think I'm supposed to want? And then what do I actually want?

See that? Where you had to read those questions a second time? That's the fog I'm talking about. And I'm not done! There is no done to this.

When do I feel most alive? If I figure that out, am I supposed to move towards it? How?
Why do I need to move at all? Why can't I just enjoy bobbing? 
Where is the knot that fastens the leash on my peace of mind, and how did it get there? How do I untie it?
How am I meant to live?

When I try to listen to my intuition as closely as I can, it stops talking. Intuition might be like the blind spot right in the center of the eye, where there aren't any rods or cones, and the optic nerve goes toward the brain. If you look straight at something and don't move your eyes, it disappears. I know it doesn't seem like that, but it's true and I don't have time to go into the science of it, people!

Maybe intuition works like the blind spot. When you are at sea, you have to sit side by side with your intuition, not directly in front of it, in order to hear its whispered directions toward shore.